Posts Tagged ‘multiple sclerosis’


A new feature of Alexa/echo is the Drop in future. This allows you to turn your echo dot into an intercom for use within the house. You can say “drop in ‘ and talk to others within your house that have an echo dot also connected to the network. In addition, other friends and family can use this single “drop in ‘ feature to call you and check in. You do not need any device other than your voice to answer a call or hang up. The set up was fairly easy. You create a group of allowed users. It is a pleasant surprise to hear your loved ones voice just dropping in to say hello.

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One of the frustrating issues I face is the inability to blow my nose. Having a nose run and needing help mopping up the drips is no fun.

My daughter recently gave me a gift which I had no idea would help solve this problem…she had read many five star reviews (there are thousands) and decided to purchase it for me. It is a Himalayan salt lamp. This lamp sits on a shelf next to my chair in a small room where I sit most days. You can read the scientific facts as to how this works… Something to do with ions and negative charge particles in the air. All I know is it keeps my nose dry enough to not need constant attention, and it is pretty. I can breathe easy (With my trusty trilogy, of course) when I am in the room with this lamp. I have included a picture with the link in the sidebar if you want more info…


Remarkable advancements in artificial intelligence and voice control devices, make me thankful that , dealing with diseases that definitely suck  comes at a time where I can take full advantage of these relatively inexpensive and easily obtained technology devices.  Recently my husband got me A “smart plug” to be used with a standard desk fan. Having issues controlling my body temperature, especially during these hot summer days, would force me to ask someone for help turning on and off a fan as needed. Now, with the use of the smart plug device, and the Amazon Alexa (echo dot), I can easily control the fan with my voice. See the sidebar for links to the device I use…. The set up is minimal and done through an app.  It is helpful to search for a fan that is not overly loud as you need to be able to be heard by the Alexa to voice command it off.


A simple device mounted to your wheelchair or table will keep liquids accessible. I have found this  device helpful as it also can act as a holder for the sip-n-puff straw attached to a vent such as the trilogy. You need to add your own clamp or strap to attach. The ability to bend it makes it possible to adjust it for your needs
Check the link in the sidebar for details.



.Entertainment control

We are at the beginning of a new age in communication and voice control devices. With the recent update to Amazon Alexa which allows it to communicate with a device called the Harmony hub, it is possible to mimic a TV remote solely with your voice. By connecting these two devices with your wireless system, you can control a smart TV and cable box by voicing it to turn on and off, change channels and change volume. Future updates to Alexa and Harmony may allow one to control streaming services such as Netflix and Hulu. For someone who cannot push buttons such as on a physical remote control, this is a game changer


Me and my Lynx-4 Scooter - 2013

Me and my Lynx-4 Scooter – 2013

So by summer of 2012, the Segway was getting less optimal for getting around and I purchased this Lynx-4 Mobility Scooter.  It is a 4-wheel version with a very low clearance ( 1 inch or less).  Due to the low clearance,  this  scooter is meant for indoor riding.  I also purchased an Armstrong lift to be able to transport this scooter in my car.  I am very pleased with the Armstrong lift and the ability to lift the scooter without effort and have it ride inside my car where it is protected from the elements and theft.  I will post a video of me using this scooter and loading/unloading.  I was able to do this myself until summer of 2013 where, when walking from the back to the front of the car, I fell.  Therefore, I have given up loading it myself and now always ask for help.  It doesn’t require strength, just the ability to walk.

I love the added mobility this scooter has given me as I can ride for hours and not worry about getting off so I could sit down (as on the Segway).  I also like NOT wearing a helmet!

Over time, I found that I needed to purchase a second scooter for  use outdoors. This scooter had a larger clearance (3 inches), allowing me to drive over cracks in the sidewalk or small speedbump’s.   The new scooter was built by PRide and called the GO-Go sport.

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