Posts Tagged ‘ALS’


… Staying connected to the  Internet becomes a lifeline when you can’t get out and about as you would like. Hours seem to melt away when you can explore the web. YouTube, Facebook, Amazon… The possibilities are endless.  

Having limitations on the use of your arms and hands make it seem impossible. I am able to stay connected to my iPad by adding a simple sling to the overhead patient lift I was already using for transfers.. By using the sling to suspend my arm from the lift, I can position my hand over the iPad sitting on my lap. The lift makes my arm weightless which allows it to float above my iPad. I can move my hand around and use my finger to navigate. I use an inexpensive glove with the index finger cut out, so that I can still place my other fingers on the glass for stability

Click the picture in the sidebar under ‘arm sling’ for a link to purchasing options.

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Bed controls

Posted: April 1, 2017 in Life hacks
Tags: ,

The ability to change positions is very important especially to someone who cannot walk and move regularly. Movement is essential to preventing bedsores and skin breakdown as well as comfort. In a hospital bed, there are bed controls that allow you to raise and lower your legs as well as the upper portion of your body. Having limited arm and hand function such as those with ALS or other neurological conditions, makes operating the controls very difficult.
On an Internet search, I found a device , created using micro light switches allowing a very light touch to control one function of hospital bed motion. My husband created this box, using the micro light switches, wired directly into the hospital bed controller . The original hospital bed controller is still functional and can be used by caregivers to control the bed. Using the alternate controller, with a very slight movement of my hand, I can raise and lower the head of the bed allowing comfort and positioning for activities such as watching TV. I have found this to be invaluable. More information can be found here…

https://alstools.wordpress.com/2014/08/27/the-bed-controller/

 

 

 



.Entertainment control

We are at the beginning of a new age in communication and voice control devices. With the recent update to Amazon Alexa which allows it to communicate with a device called the Harmony hub, it is possible to mimic a TV remote solely with your voice. By connecting these two devices with your wireless system, you can control a smart TV and cable box by voicing it to turn on and off, change channels and change volume. Future updates to Alexa and Harmony may allow one to control streaming services such as Netflix and Hulu. For someone who cannot push buttons such as on a physical remote control, this is a game changer


Me and my Lynx-4 Scooter - 2013

Me and my Lynx-4 Scooter – 2013

So by summer of 2012, the Segway was getting less optimal for getting around and I purchased this Lynx-4 Mobility Scooter.  It is a 4-wheel version with a very low clearance ( 1 inch or less).  Due to the low clearance,  this  scooter is meant for indoor riding.  I also purchased an Armstrong lift to be able to transport this scooter in my car.  I am very pleased with the Armstrong lift and the ability to lift the scooter without effort and have it ride inside my car where it is protected from the elements and theft.  I will post a video of me using this scooter and loading/unloading.  I was able to do this myself until summer of 2013 where, when walking from the back to the front of the car, I fell.  Therefore, I have given up loading it myself and now always ask for help.  It doesn’t require strength, just the ability to walk.

I love the added mobility this scooter has given me as I can ride for hours and not worry about getting off so I could sit down (as on the Segway).  I also like NOT wearing a helmet!

Over time, I found that I needed to purchase a second scooter for  use outdoors. This scooter had a larger clearance (3 inches), allowing me to drive over cracks in the sidewalk or small speedbump’s.   The new scooter was built by PRide and called the GO-Go sport.

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