Archive for the ‘Life hacks’ Category


One of the frustrating issues I face is the inability to blow my nose. Having a nose run and needing help mopping up the drips is no fun.

My daughter recently gave me a gift which I had no idea would help solve this problem…she had read many five star reviews (there are thousands) and decided to purchase it for me. It is a Himalayan salt lamp. This lamp sits on a shelf next to my chair in a small room where I sit most days. You can read the scientific facts as to how this works… Something to do with ions and negative charge particles in the air. All I know is it keeps my nose dry enough to not need constant attention, and it is pretty. I can breathe easy (With my trusty trilogy, of course) when I am in the room with this lamp. I have included a picture with the link in the sidebar if you want more info…


Remarkable advancements in artificial intelligence and voice control devices, make me thankful that , dealing with diseases that definitely suck  comes at a time where I can take full advantage of these relatively inexpensive and easily obtained technology devices.  Recently my husband got me A “smart plug” to be used with a standard desk fan. Having issues controlling my body temperature, especially during these hot summer days, would force me to ask someone for help turning on and off a fan as needed. Now, with the use of the smart plug device, and the Amazon Alexa (echo dot), I can easily control the fan with my voice. See the sidebar for links to the device I use…. The set up is minimal and done through an app.  It is helpful to search for a fan that is not overly loud as you need to be able to be heard by the Alexa to voice command it off.

Ramps

Posted: June 17, 2017 in Life hacks
Tags: , , , ,

To maintain independence in the home, it is important to allow easy transitions throughout the house. With the use of ramps, this is entirely possible. There are many different types of ramps on the market. If you are using a manual wheelchair, it is good to stick to the guidelines of 1 foot of ramp for every 1 inch of rise. If using a power wheelchair, this rise ratio is not as important as you can power through steeper inclines.  

Of the many types of ramps on the market, The traditional “suitcase” ramps are easy to store, unfold and use for smaller rises such as a single or double step up. These also have the advantage of being portable which can be good for visiting family and friends who otherwise do not have accessible homes.  They are made of aluminum and have a more industrial look then custom made ramps.

   I particularly like ramp adapters, which are a good alternative if you have someone handy with a saw and screwdriver.. By attaching these to wood boards, you can build ramps of any size and easily customize them to various locations in the house. I have included a link to where these may be purchased in the sidebar

.


I am always been warned to watch out for pressure sores. Fortunately, knock on wood, I have not experienced any severe issues. I like to think that perhaps it is a result of precautions I take. Padding where bones impact hard surfaces is  key. My favorite cushions are made by a company called Roho. They have air bladders in them which can be inflated or deflated as needed. They also come with a pump. While these may be a little pricier than other cushions … they are worth it.. I will include a link  to the ones I use , in the sidebar


A simple device mounted to your wheelchair or table will keep liquids accessible. I have found this  device helpful as it also can act as a holder for the sip-n-puff straw attached to a vent such as the trilogy. You need to add your own clamp or strap to attach. The ability to bend it makes it possible to adjust it for your needs
Check the link in the sidebar for details.



Part of the good, the bad and the ugly of ALS is that the mind is unaffected. Using your mind to control your body without the help of muscles is a big dilemma. Thoughts of helplessness can increase stress which is picked up by the heart and results in increasing heart-rate, blood pressure and body temperature. It becomes a vicious cycle.

If you still have control of speech, the “hey Siri” function of an iPhone or iPad is a lifesaver. My husband mounted an old iPad near the bed so that I can call out in an emergency and get help from anyone on my list of contacts. This does not require a Sim card or a cellular service plan. It does require access to the Internet. Calls can be made through FaceTime audio as one example or text-type messages sent via the message function. 
* “Hey Siri” is supported on iPhone SE, iPhone 6s or later, and iPad Pro (9.7-inch) without being plugged into power. “Hey Siri” is supported on iPhone, iPad, and iPod touch with iOS 8 or later while plugged in. Not supported on first-generation iPad, iPad 2, and first-generation iPad mini.

Siri is available on iPhone 4s or later, iPad Pro, iPad Air or later, iPad (3rd generation) or later, iPad mini or later, and iPod touch (5th generation or later) and requires Internet access. Siri may not be available in all languages or in all areas, and features may vary by area. Cellular data charges may apply.

Some features may not be available for all countries or all areas. 


… Staying connected to the  Internet becomes a lifeline when you can’t get out and about as you would like. Hours seem to melt away when you can explore the web. YouTube, Facebook, Amazon… The possibilities are endless.  

Having limitations on the use of your arms and hands make it seem impossible. I am able to stay connected to my iPad by adding a simple sling to the overhead patient lift I was already using for transfers.. By using the sling to suspend my arm from the lift, I can position my hand over the iPad sitting on my lap. The lift makes my arm weightless which allows it to float above my iPad. I can move my hand around and use my finger to navigate. I use an inexpensive glove with the index finger cut out, so that I can still place my other fingers on the glass for stability

Click the picture in the sidebar under ‘arm sling’ for a link to purchasing options.